Saturday, January 3, 2009



Wow, has it really been since April that I've posted?

Miles has been in the NICU for 2 1/2 months now...It went by fast until now. I'm just getting anxious now. I think I got my hopes up for him to be home by my birthday (Jan. 11) but now it looks like he'll be home by his due date (the 18th), maybe even after that. I'm just ready for him to be home and all these emotions are building and it's getting really hard. I know it will be soon enough but he hasn't been home for over two months now. It's time. I need him here. I need to know who he is and what makes him happy. I don't feel like I can comfort him when he needs it. I don't feel like I have a bond with him. I need that. It's frustrating but if he needs the time then that's what I'll give him.

He's progressing well though. He started off at 2 lbs. 1 oz. and now he's at 6 lbs. 14 oz. He's had a consistent weight gain which is something they require for him to go home. He started off so frail and bony and now he has little rolls here and there and chubby fingers and toes. He started off with much needed support and now he's breathing pretty much on his own and keeping his body temperature up which is another requirement for him to go home. He just started learning how to eat from a bottle which is going well but there's much more learning for him to do. He's taking 5 out of 8 bottles a day. Some of them he tires out and they'll have to give him the rest of the the milk through his feeding tube. That's what is setting him back. He's also having too many oxygen desaturations and apnea episodes which he can't do at all for 5 days straight before he comes home. Time. I just need to stay positive and give him time to get stronger and he'll be home before I know it.

3 comments:

Laurie and Alan said...

Hi! Wow, that's a lot to be handleing emotionally...I'm amazed at how much he grown and the weight he's gained! We are praying for Miles, and specifically that he'd get better on breathing on his own, he's a tough little babe, look at how's hes progressed, thank you Lord.
Take care Cheri, we love you all.

Aleah said...

He'll be home before you know it and you guys will be bonding like he was never in the NICU!

It has got to be hard while you're waiting....I can only imagine.

Still praying for you guys and Miles. : )

Anonymous said...

Inside your belly He would be in God's hands...as he still is now. I've been singing "He's got our little tiny Miles...in His hands...He's got the whole world in His hands". There is room for you and the rest of us to just crawl inside God's hands and rest, knowing that in God's time Miles will be by your side at home. Love you.